Although the pathology report from Northwestern University tested positive for Hodgkin's Lymphoma, MSK has found some additional unidentified abnormal cells. These cells need to be identified before I start chemo...
I tried to be very positive after the initial delay. However, I confessed to the nurse that I am not feeling well and I lost my drive.
Simply stated, I am in pain. Nothing helps: ice, heat, tylenol, and now the newly prescribed percocet.
Last night I took some Aleve and I did get some relief! I am not supposed to take Aleve...but I went out and bought some. I think Ursula's expanding waistline is pushing on a nerve or something. Damn you Ursula.
I have been in a bad mood all day. I am angry I have no control over this, over my body. I am supposed to call MSK between 1 and 2 pm tomorrow to see if I can come up and get chemo. I was supposed to go at 8 am.
I am anticipating the worst. Now trying to hope for the best.
Sofia is also very sick, possibly with strep and that is not helping. Driving back from the doctor yesterday I just started to cry. No one will love Sofia like me. No one will take care of her like me.
I hope that the treatment plan gets back on track.
I wrote your FB good luck post before reading this, so the good luck wishes are for slightly different things now. I'm so sorry for this delay. I can't help but compare your journey thus far to what I experienced with my Dad, and I know that although it was always a lung cancer diagnosis, he went through a couple different variations as the testing went on. Trust in the doctors, but continue to ask questions and stay informed. Sofia will learn from you as she watches you in this struggle. She will learn strength & grace & beauty & perseverance & humor.
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